In the News
Rare Disease Day Celebrations 2026
On February 28th, the RareKids-CAN community came together in a powerful show of collaboration and progress to celebrate Rare Disease Day 2026.
Why Caregiver Voices Matter in Global Rare Disease Research
For families affected by rare diseases, the path to answers is seldom straightforward. Diagnosis can take years, treatments are often limited, and navigating healthcare systems can be overwhelming.
Strengthening Global Bridges: Canada’s Leadership in Rare Disease Research at the ERDERA Sofia Meeting
The Canadian National Mirror Group continues to play an important role in connecting Canada’s rare disease ecosystem with global initiatives
RareKids-CAN Leaders Present Vision for Advancing Pediatric Clinical Trials at ACCESS Annual Meeting
RareKids-CAN Network Director Breanne Stewart and Nominated Principal Investigator Dr. Thierry Lacaze recently presented at the ACCESS Annual Meeting in Toronto on March 10-11th, 2026.
Press Release: New legislation to improve access to essential pediatric and rare disease medications introduced in Parliament
The legislation is the culmination of months of collaborative work led by the RareKids-CAN network and the Child Health Policy Accelerator at The Hospital for Sick Children, with contributions from RareKids-CAN representatives and patient advocates from across the country.
Key Considerations for Rare Diseases in First Nations* Populations in Canada
Many First Nations communities face a disproportionate demand for specialized rare disease care and early identification is essential for timely treatment and life planning.
RareKids-CAN Open Call: Sponsored American Society for Gene & Cell Therapy - Attendance for Pediatric ATMP Clinical Trial Professionals
Apply today to attend the American Society of Gene & Cell Therapy (ASGCT) Annual Meeting in May 2026.
