Affiliations and Collaborators
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We are grateful for the following affiliations and collaborators:
Host Institution
Clinical Trial Unit Sites
Patient Organizations
Cystic Fibrosis Canada
Immunity Canada
MS Canada
Sumaira Foundation
Cure SMA Canada
Muscular Dystrophy Canada
Canadian Alliance for Rare Disorders of the Skeleton (CARDS)
CANadian Aortopathy and Connective Tissue Disorders Registry (CAN-ACT)
Canadian Organization for Rare Disorders (CORD)
Congenital Hyperinsulinism International
KidsCAN
Research Networks
Canadian Pediatric Endocrinology Group (CPEG)
Canadian Society of Systemic Autoinflammatory Diseases (CANSSAID)
Network of Networks (N2)
Stem Cell Network
Clinical Immunology Network- Canada
Canadian Consortium for Children’s Bone Health (CCCBH)
INFORM Rare
Neuromuscular Disease Network for Canada (NMD4C)
Care4Rare-SOLVE/ All for One Connect
International Collaborations
Pediatric Trials Network (PTN)
Critical Path Institute (C-PATH)
European Clinical Research Infrastructure Network (ECRIN)
European Rare Disease Research Coordination and Support Action (ERICA)
conect4children (c4c)
European Joint Programme on Rare Diseases (EJP RD)
National Organization for Rare Disorders (NORD)