For Patients and Families
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Coffee Chats
Join us online for a coffee chat. This is a chance to meet with others who are impacted by pediatric rare disease. Many of usare parents and caregivers who appreciate the time to connect and learn together. We meet online via Zoom and there are two time options for you to choose: 2 P.M. EST or 8 P.M. EST.
Upcoming Dates:
December 16: What does this time of year look like for your family?
January 8: Hear from lived experience!
Future Dates: February 12 | March 12 | April 16 | May 14