Participation Opportunities

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Find out about the latest participation opportunities. If you are an investigator and would like to promote your project on this page, please complete the form on the contact us page and we will contact you for more information.

Intellectual Disabilities (e.g., Rett’s Syndrome)

Date posted: 12-May-2025
Sponsor: University of Alberta
Investigators:
Dr. Shannon Scott, RN, PhD
Professor, Faculty of Nursing
Ph. 780-492-1037 
Shannon.scott@ualberta.ca

Dr. Lisa Hartling, PhD
Professor, Department of Pediatrics
Ph. 780-492-6124
Hartling@ualberta.ca

Arts-based digital knowledge translation tools for parents, on common pediatric conditions in emergency department visits 

About:

A group of researchers at the University of Alberta are interested in hearing from parents of children with intellectual developmental disorders (IDD). They are seeking feedback on their newly developed resource. Parents will be asked to complete a 10 minute survey online.

This study has been funded by the Canadian Institutes of Health Research and has been approved by the University of Alberta Research Ethics Board (Pro00062904).

You can participate if you are:

  • A parent of a child under 18 years who has an intellectual developmental disorder (e.g. Autism Spectrum Disorder, Trisomy 21, Fragile X, Rett’s Syndrome)

  • Living in Canada

  • Able to read and write English

Time commitment:

  • You will be asked to complete a 10-15 minute survey online