Patients and Families

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Our Patient and Family Partners have an active list of resources, these include:

Curious to learn more about training and other communities passionate about pediatric rare disease? Explore our collection of ideas that's capturing our attention. Have a suggestion for our collection?

Email us at: rkengage@mcmaster.ca
Link: https://wakelet.com/wake/GD4GLRHyI8DV-n5FLG4gt

Curious to learn more about pediatric rare disease publications? Explore our collection of ideas that's capturing our attention. Have a suggestion for our collection?

Email us at: rkengage@mcmaster.ca
Link: https://wakelet.com/wake/P_UODLbycDCId3KDEsmiZ

Curious about helpful tools, decision aids and resources specific to pediatric rare disease? Explore our collection of ideas that's capturing our attention. Have a suggestion for our collection?

Email us at: rkengage@mcmaster.ca 
Link: https://wakelet.com/wake/Bwc8OksYLEQF9KQjbKF1F