Earlier this month, the RareKids-CAN community came together to connect, collaborate, and learn—both in person in Ottawa and virtually from coast to coast to coast and beyond! It was incredible to see so many familiar faces and to welcome new members, all united in our shared commitment to advancing pediatric rare disease clinical trials and treatments in Canada.

This past Rare Disease Day on February 28, 2025, our team came together to raise awareness, share patient and family experiences, and celebrate the work we’ve done so far while acknowledging the work yet to come as a network.

Congratulations to network members Maureen Smith, Dr. Beth Potter and Dr. Lauren Kelly for receiving IHDCYH competition awards!