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Family Engagement in Research Fundamentals

Join members of the RareKids-CAN Network for a one-hour education session on the topic of patient and family engagement.

Led by Alicia Hilderley and Sara Pot, patient and family engagement facilitators with RKC, this will be an interactive opportunity to learn more about the fundamentals of patient and family engagement in research.

πŸ“… Date & Time: September 17th 2025, 11am-12pm PT / 2-3pm ET

πŸ“ Location: Zoom

πŸ”— Join Here: https://zoom.us/j/94802759422

We look forward to your participation!

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March 24

RareKids-CAN Round Up: Overview, Updates, and Collaboration [VIRTUAL]

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October 16

Coffee Chat: Digital Storytelling in the Rare Spaces