Materials and Resources

πŸ“– Pre-Conference Reading Materials

  • RareKids-CAN Virtual Information Session [Dropbox Link]

  • Standard of Care Draft Paper: Reforming Pediatric Clinical Trial Regulations for Maximum Impact [DOC] [PDF]

  • Access to unregistered drugs in Australia [PDF]

  • Australian Government Therapeutic Goods Administration β€” videos that give an effective overview of their Special Access Scheme:

    • Prescribe an unapproved therapeutic good (health practitioners) [YouTube link]

    • Unapproved products for individual patients (Special Access Scheme) [YouTube link]

    • Unapproved products for multiple patients (Authorised Prescriber) [YouTube link]

πŸ“… Conference Agendas

  • RareKids-CAN Conference Agenda - April 10th [PDF]

  • RareKids-CAN Conference Agenda - April 11th [PDF]

  • Pre-Clinical Pipeline Workshop Agenda - April 11th [PDF]

πŸ’¬ Breakout Room Information

πŸ”— Additional Resources

  • RareKids-CAN Parking Lot - Questions, Reflections and Insights [PNG]

  • List of Abbreviations [PDF]

  • Hilton Garden Inn Ground Floor Plan [PNG]

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