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      <image:title>News - Rare Disease Day Celebrations 2026 - Make it stand out</image:title>
      <image:caption>Ana Acosta and Dr. Gibson discuss research from the Gibson Lab during their Rare Disease Day presentation. (photo courtesy of BCCH)</image:caption>
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      <image:title>News - Rare Disease Day Celebrations 2026 - Make it stand out</image:title>
      <image:caption>Mattison Stojcic from the Turvey Lab at BC Children’s Hospital Reasearch Institute. (photo courtesy of BCCH)</image:caption>
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      <image:title>News - Rare Disease Day Celebrations 2026 - Make it stand out</image:title>
      <image:caption>Dr. Elodie Portales-Casamar (third from left), RareKids-CAN Real World Data sub-platform co-lead, participapted in a Rare Disease Day panel hosted by RQMO. (photo courtesy of RQMO)</image:caption>
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      <image:caption>Members of the London Health Science Centre team pose for photos during their Rare Disease Day awareness celebration. ((photo courtesy of LHSC).</image:caption>
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      <image:title>News - Rare Disease Day Celebrations 2026 - Make it stand out</image:title>
      <image:caption>Members of the University of Laval team during their Rare Disease Day celebration. (photo courtesy of the University of Laval)</image:caption>
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      <image:caption>RareKids-CAN Clinical Trial Navigator, Daislyn Vidal, prepares to great parents and rare disease community members at the University of Saskatchewan on Rare Disease Day 2026. (photo courtesy of the University of Saskatchewan)</image:caption>
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      <image:caption>Genevieve Currie (left) and Leah Sarah Peer (right) have joined the Global Rare Disease Priority Setting Partnership Steering Commitee at the James Lind Alliance.</image:caption>
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      <image:caption>RareKids-CAN Nominated Principal Investigator, Thierry Lacaze, presents at the March 2026 ERDERA Meeting.</image:caption>
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      <image:caption>Headshot of Simone Kumar, Youth Partner</image:caption>
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      <image:caption>Headshot of Catherine Stratton, PhD Student</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2025-05-23</lastmod>
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      <image:title>News - RareKids-CAN 2025 Conference Recap: A Celebration of Connection, Collaboration &amp;amp; Progress - Make it stand out</image:title>
      <image:caption>Thank you to our conference sponsor, Innovative Medicines Canada, for their support.</image:caption>
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      <image:caption>Table of colouring and activity books, glowsticks, cookies, and two teddy bears at London Health Sciences Centre. Photo courtesy of Cara Grobbecker.</image:caption>
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      <image:caption>Rare Disease Day banner at London Health Sciences Centre. Photo courtesy of Cara Grobbecker.</image:caption>
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      <image:caption>Podium and projection screen set-up for Rare Disease Day 2025 at London Health Sciences Centre. Photo courtesy of Cara Grobbecker.</image:caption>
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